A Learning Community of Improvement Partnership (IP) and State CYSHCN Programs (A project in collaboration with NIPN, JSI, HRSA/MCHB/DCYSHCN)

Over a 9 month period, 4 state-based Improvement Partnerships (IPs) and Children and Youth with Special Health Care Needs (CYSHCN) programs (MD, NM, NY, OH) will all continue to participate in year two of the quality improvement (QI) Learning Community facilitated by the National Improvement Partnership Network (NIPN), in collaboration with JSI and MCHB. States will focus on an existing or new project in which to implement sustainable QI practices. Each state is a current or past participant in the D-70 program sponsored by DCYSHCN of the MCHB.

The Learning Community (LC) will leverage IPs and D70 improvement activities to develop a sustainable infrastructure for continuous QI in their state.

IP&CYSHCN Learning Community Objectives

  • Title V staff and their partners are engaged and recognized as important and expert partners in the IP;
  • Quality improvement initiatives are consistent with the goals of the D70 grant program to strengthen the delivery of integrated and coordinated services to children and youth with special health care needs;
  • The needs of children and youth with special health care needs are routinely reflected in the work of the IPs;
  • Collaboration is institutionalized to ensure sustainability and involvement of CYSHCN in the IP.


Defining Our Partners

Improvement Partnerships (IPs) and the National Improvement Partnership Network (NIPN)

IPs exist or are forming in a number of states for the purpose of spreading best practices and innovation for child healthcare quality. An Improvement Partnership is a durable state or regional collaboration of public and private partners that uses the science of quality improvement and a systems approach to change health care infrastructure and practice. NIPN (a network supporting IPs) provides technical assistance to new and existing IPs. IPs benefit from the expertise and involvement of Title V staff and partners.

Title V Maternal and Child Health Services Block Grant Program

Enacted in 1935 as a part of the Social Security Act, the Title V Maternal and Child Health Program is the Nation’s oldest Federal-State partnership. Specifically, the Title V Maternal and Child Health program seeks to:

  • Assure access to quality care, especially for those with low-incomes or limited availability of care;
  • Reduce infant mortality;
  • Provide and ensure access to comprehensive prenatal and postnatal care to women (especially low-income and at risk pregnant women);
  • Increase the number of children receiving health assessments and follow-up diagnostic and treatment services;
  • Provide and ensure access to preventive and child care services as well as rehabilitative services for certain children;
  • Implement family-centered, community-based, systems of coordinated care for children with special healthcare needs; and
  • Provide toll-free hotlines and assistance in applying for services to pregnant women with infants and children who are eligible for Title XIX (Medicaid).

Children and Youth with Special Heath Care Needs (CYSCN)

Children and youth with special health care needs (CYSHCN) are defined by the Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (MCHB) as: “...those who have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by children generally.” The CYSHCN Program works to improve systems of care for anyone from birth through age 21 with a chronic physical, developmental, behavioral or emotional illness or condition. Some examples include ADHD, asthma, autism spectrum disorders, childhood cancers, cerebral palsy, deaf or blind, diabetes, Down syndrome, heart disease, and mental health conditions.

D-70 Grants

D-70 grants are State Implementation Grants for Systems of Services for CYSHCN. In other words, improving the System of Services for CYSHCN is the primary goal of the D70 HRSA-funded state implementation grants. The grants are meant to improve access to a quality, comprehensive, coordinated community-based systems of services for CYSHCN and their families that is family-centered and culturally competent.

John Snow Inc.

A public health management consulting company dedicated to improving the health of individuals and communities around the world. They work in partnership with governments, organizations, and host-country experts to improve quality, access and equity of health systems worldwide. JSI has implemented projects in 106 countries, and currently operates from eight U.S. and 81 international offices, with more than 500 U.S.-based professionals and 1,600 host country staff.

Project Contact

Judith Shaw, EdD, MPH, RN, FAAP