Improving Care for Children with Chronic Illness

Father, son and doctorThe project works with health care practitioners to improve outcomes for children and youth with chronic illness. Current efforts focus on the population of children cared for in The University of Vermont Children’s Hospital Specialty Center, in particular those children with diabetes, cystic fibrosis, kidney disease, inflammatory bowel disease (IBD). In addition to clinic specific projects, we work collectively to improve the care of children with chronic conditions.

Our recent focus has turned to transitions of care, and we are engaging specialty clinics from the UVM Children's Hospital Specialty Center. Through this work, we aim to provide a framework for the safe and appropriate transition of care from pediatric specialty care to adult primary or specialty care.


  • To develop and test specific changes to improve the care of children with chronic illness in Vermont.
  • To promote efficient, coordinated data collection efforts that support quality improvement initiatives for children with chronic illness.


  • Using applicable standards of care, this project developed a comprehensive patient data management tool that is being used to inform the development of quality improvement efforts
  • Facilitated workgroups to enhance the coordination of care for children with chronic conditions throughout Vermont
  • The Gastroenterology Clinic decreased the percentage of patients with active Irritable Bowel Disease status using a pre-visit planning process
  • Developed transition checklists and educational handouts that guide developmentally appropriate anticipatory guidance for patients and families
  • Improved annual influenza vaccination rates of children with chronic conditions

Project Contact

Alyssa Consigli, RD