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7 revisions, weakness in left side, and vision problems. Alex Parrow can still smile.
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Lindsay October 2000. Shunted at 2 months for hydro, 2 revisions.
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Nathan Adams has hydro and is autistic.
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May, 2000. Madi and Lori Barnhardt, who has hydro and spina bifidia.
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Nov, 1999. Parents of kids who have hydro. Taken the day after a
"Madi's Fund Dinner".
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Nov, 1999. Greg Tocco, Sadi Robinson, and Madi—all three have shunts.
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Aug 21st, 1997. Madi with her friend Leslie, who also has hydro.
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Jun, 2000. Janelle Marszalek, Madi's roomie at Boston Children's Hospital.
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Nathan Adams.
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Sadie, who has acquired non-communicating
Hydrocephalus, with her little brother Sam.
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Dr. Wald, at "Madi's Dinner", Nov, 1999. "Chocolate and Coke—favorites of neurosurgeons."
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Jordan Baker is 5 months old. She lives in Burlington,
VT and has spina bifida and hydrocephalus. She spends her days smiling at
her mom and playing with toys. She is an absolute joy to all who meet her.
December 2000
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Alex at 4 months old, receiving physical therapy.
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Maisie Lajeunesse lives in Barre, VT. She has
hydrocephalus. She enjoys going to school, playing with her friends and
reading books. Picture taken December 2000.
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Madi with her big sister, Tamra. They enjoy playing
games, reading books, watching Madi's favorite show - Barney, and doing alot
of fun activities outside. Tamra is Madi's biggest fan! Picture taken
November 2000.
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Friends Forever - Shelby Lavigne & Madi. Shelby lives in
North Montpelier, VT. She was a preemie and has multiple shunts to manage
her hydro. Her days are filled with playing "peek-a-boo", joking with her
sister and watching her favorite TV shows. Shelby has had 3 shunt
surgeries to place 3 separate shunts. December 1999.
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At the Hydrocephalus Association's 2000 Conference:
Michelle Lavigne, Greg Tocco and Debra Jaurigue. Greg is the founder and
director of The Hydrocephalus Foundation, Inc. in Saugus, Massachusetts. He
has acquired hydrocephalus from a baseball accident at age 13, and has
undergone 22 shunt revision surgeries
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Donna was diagnosed "in-utero" with hydrocephalus.
Fortunately, her CSF is draining on it's own and she has not needed a shunt
placement. Yeah! She is missing 2 other parts of her brain and receives
physical and occupational therapy. Donna is a very happy and active little
girl.
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At the Hydrocephalus Association's 2000 Conference: Michelle
Lavigne, Kellie Robinson (co-author of "Hydrocephalus: A Guide for Patients,
Families & Friends") and Debra Jaurigue. Kellie has acquired hydrocephalus
from a brain tumor and is effected by seizures. She and her husband, Chuck
Toporek, have paved the way for families to learn more about hydrocephalus
and talk about it openly." May 2000.
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