Resource Guides and Supports

"Hydrocephalus: A guide for parents, Families and Friends" by Chuck Toprek & Kellie Robinson. Published by O'Reilly & Associates, Inc

"Families who read this book will find medical information clearly explained, advice to ease daily life, and tools for patient advocacy."
You can order the book from the website : www.amazon.com

Early Intervention Dictionary by James G. Coleman. Published by Woodbine House.

This book defines hundreds of medical, therapeutic, and educational terms commonly used in the early intervention field. It is an invaluable dictionary that helps parents and many different professionals in the early intervention field to understand one another and succesfully collaborate.

http://www.yoursurgery.com/p_shunt.html

This website provides a basic description of what is involved in the placement of a shunt for treatment of hydrocephalus. The information includes the anatomy and pathology of hydrocephalus, procedure complications, and the recovery process of shunt surgery. You can also look up other types of surgeries. This website may answer some of your questions, however it does not replace your neurosurgeon's and doctor's knowledge. It's important to always ask your neurosurgeon or doctor about the specific treatment and management of your child's hydrocephalus and address all of your questions to them.

HYCEPH-L List (LISTSERV@listserv.utoronto.ca)

The HYCEPH-L List is for people with hydrocephalus, their friends, and family members, health care professionals, and anyone else with an interest in the condition. The purpose of the list is to share information and support in dealing with hydrocephalus. To subscribe to the list (it is FREE) send an email to: LISTSERV@listserv.utoronto.ca asking to subscibe to HYCEPHH-L