Madi's Fund for Hydrocephalus Research
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Madi's Fund is a nonprofit endowment fund for hydrocephalus & associated neurosurgical research located at UVM College of Medicine in Burlington, Vermont
The ultimate vision of Madi's Fund is to help create a healthier and better community through research, education and public knowledge of hydrocephalus and associated pediatric neurosurgical diseases. Madi's Fund is dedicated to the families and individuals affected by these conditions and the medical community who care for them.
Read about Madi's story


Hydrocephalus: A Guide for Patients, Families and Friends

Authors Chuck Toporek and Kellie Robinson have lived with hydrocephalus for years and have interviewed neurosurgeons, patient advocates, and families living with the condition.

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"It is our hope that Madi's Fund and the research of UVM College of Medicine will lead to advancements in the prevention and treatment of hydrocephalus, and other associated neurosurgical conditions, and increase public awareness and knowledge of these conditions."


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