Resource Guides and Supports

There are many places to gain more information about hydrocephalus.  The UVM Department of Neurosurgery has created a pamphelt for parents of children with shunted hydrocephalus which they can give you at your next apointment, or downloaded for free by clicking this link: Download Living with Hydrocephalus: A Guide For Parents.

Another excelent source of information is the Hydrocephalus Association. About Hydrocephalus: A Book for Families is an excelent resource for more information about all aspects of hydrocephalus. Even more fact sheets produced by the Hydrocephalus Association can be found here.

A third resourse is Hydrocephalus: A Guide For Patients, Familes and Friends by Chuck Toprek & Kellie Robinson can be purchased on Amazon.com.

Early Intervention Dictionary by James G. Coleman defines hundreds of medical, therapeutic, and educational terms commonly used in the early intervention field. It is an invaluable dictionary that helps parents and many different professionals in the early intervention field to understand one another and succesfully collaborate.

The HYCEPH-L List is for people with hydrocephalus, their friends, and family members, health care professionals, and anyone else with an interest in the condition. The purpose of the list is to share information and support in dealing with hydrocephalus. To subscribe to the list (it is FREE) send an email to: LISTSERV@listserv.utoronto.ca asking to subscibe to HYCEPHH-L

Vital Card: Vital Information for Critical Times is a lamenated double sided card that has all of your child's medical history including the most recent MRI or CT.  Though your most recent CT or MRI should on file with your doctor and hosptial, if you are traveling it could be very useful to have your most recent MRI or CT available to aid in diagnosis.